Data & Evaluation

How do I know if my state is making services easy to use?

Even though the 2005/06 National Survey of Children with Special Health Care Needs found that 89.1% of respondents said services were organized in ways that family can use them easily, our research indicates this number may not accurately portray the experience of CSHCN and their families when trying to use community-based services. In a pilot survey conducted by our Center, 11 of 14 Title V Directors reported it was not easy to access mental health services, and 15 of 16 respondents said dental services were not easy to access. 13 out of 14 directors felt respite care was not easy to access.

Below are some resources to help you decipher if services in your state are easy to use and how you compare to others across the country.

  • State Performance Measures Each year, all states are required to submit an Application and Annual Report for Federal funds for their Title V Block Grant. In FY 2009-2010, states had to complete a five-year needs assessment. A few states have created measurable objectives to assess their progress on Indicator 5.
    • Alabama
      To promote access to community-based services for CYSHCN and their families, Alabama created a checklist measurement tool of five characteristics that will be used to measure progress toward this objective. The characteristics range from providing training and technical assistance to CBS to increasing knowledge of CBS among CYSHCN and their families. Each characteristic will be measured on a 0 – 3 scale (not met, partially met, mostly met, and completely met), bringing the total possible scores for progress toward the entire measure to 15. Objective criteria have been set for each score. Please visit the Alabama Statewide 5-Year Maternal and Child Health Needs Assessment (PDF) to read more about how Alabama is making services easier to use.
    • Illinois
      As part of the 2010 assessment, Illinois's State Performance Measure # 2 says that the Title V program will "Integrate medical and community-based services for MCH populations and improve linkage of clients to these services, particularly CSHCN." To achieve this priority, Illinois created a scoring system to measure progress on five activities that were identified as mechanisms for promoting and enabling MCH service integration. For more information on how Illinois designed this measurable objective, please read the Illinois Maternal and Child Health Services Block Grant FFY'11 Needs Assessment (PDF)
  • Title V National Performance Measures A Performance Measure describes a specific maternal and child health need that, when successfully addressed, can lead to a better health outcome within a specific time frame. There are 18 National Performance Measures.
  • Agency for Healthcare Research and Quality Child Health Care Quality Measures Explains the development and purpose of Title V performance measures and health system capacity indicators.
  • Data Resource Center Includes findings from the National Survey of Children's Health and the National Survey of Children with Special Health Care Needs. Data from the Presentations Library and Examples of Data Use instruct on how to analyze, use, and report information from the surveys.
  • AMCHP Data and Assessment
  • Title V Information System Information and documents, including financial and program data, related to Title V.
  • National Center for Health Statistics Survey Measures Catalog NCHS Survey Measures Catalog provides an overview of questions about child and adolescent mental health, and functioning and disability in various surveys of the NCHS Data Systems.
  • KIDS COUNT A project of the Annie E. Casey Foundation, KIDS COUNT is a national and state-by-state project to track and measure the educational, social, economics, and physical well-being of children in the United States.
  • Data Accountability Center (DAC) Provides data about children and youth with disabilities served under the Individuals with Disabilities Education Act (IDEA).